kitchen window view
February 26, 2010
Past Prayers
A long while ago I posted some prayer requests HERE.
I thought I'd bring up to date on how things have been coming along since.
- Please continue to pray that my lungs stay clear. I have not gotten a virus so far, praise God.
- My temperature is now back to normal! No more night sweats or anything crazy like that. Back to being my cold, bundled self...
- I'm off of I.V.s now of course, and have been off of them for awhile. THANK GOD. I hate hate being on those things...
- My left arm is also back to normal! It is no longer black and blue, and has returned to my normal skin color. I was so anxious that I had lost feeling in it permanently, because it had been numb for weeks. I am happy to report that slowly and surely the numbness went away completely and I can use both hands as good as ever.
- I am still struggling with sleep. Not nearly as much as I was a month ago... but it is still an issue. Most nights I sleep decently these days, but then I will sporadically have a night where I just lie awake so very alert. I have an anti-anxiety medication that sometimes helps, sometimes doesn't. Sleeping pills don't work at all.
- Please also continue to pray for NO rejection. Because my PFT tests are going well, and I feel so great, I have not yet had to have a bronchoscopy. I am thrilled with this because, really, who wants to have one of those miserable procedures? Not me! Anyways, bronchs are one of the main ways that they test new lungs for rejection. Please pray that even though I do not have to do that test, that there is nothing going on in there that we are missing.
- And last but not least, we are home! Seth has returned back to work at his normal job for three weeks now. I stay home with Levi. We are back to normal life. More of a normal life than before. I'm enjoying putting dinner on the table, taking Levi to the park and on play dates, making homemade bread...
It is so cool to look back on past prayer requests and trials and to see ones God has carried me through.
My main request now is for a prayer of praise! I don't think I could thank God enough for everything He has done in my life recently. There are not enough hours in the day. Any help I could get -- that'd be great!
Add ons of praise:
My sister is getting out of the hospital! Very good.
As of today I have a brand new niece! Seth's brother and his wife had their baby, a baby girl! What a glorious gift from the Lord!
Praise
Praise
Praise
I thought I'd bring up to date on how things have been coming along since.
- Please continue to pray that my lungs stay clear. I have not gotten a virus so far, praise God.
- I'm off of I.V.s now of course, and have been off of them for awhile. THANK GOD. I hate hate being on those things...
- My left arm is also back to normal! It is no longer black and blue, and has returned to my normal skin color. I was so anxious that I had lost feeling in it permanently, because it had been numb for weeks. I am happy to report that slowly and surely the numbness went away completely and I can use both hands as good as ever.
- I am still struggling with sleep. Not nearly as much as I was a month ago... but it is still an issue. Most nights I sleep decently these days, but then I will sporadically have a night where I just lie awake so very alert. I have an anti-anxiety medication that sometimes helps, sometimes doesn't. Sleeping pills don't work at all.
- Please also continue to pray for NO rejection. Because my PFT tests are going well, and I feel so great, I have not yet had to have a bronchoscopy. I am thrilled with this because, really, who wants to have one of those miserable procedures? Not me! Anyways, bronchs are one of the main ways that they test new lungs for rejection. Please pray that even though I do not have to do that test, that there is nothing going on in there that we are missing.
- And last but not least, we are home! Seth has returned back to work at his normal job for three weeks now. I stay home with Levi. We are back to normal life. More of a normal life than before. I'm enjoying putting dinner on the table, taking Levi to the park and on play dates, making homemade bread...
It is so cool to look back on past prayer requests and trials and to see ones God has carried me through.
My main request now is for a prayer of praise! I don't think I could thank God enough for everything He has done in my life recently. There are not enough hours in the day. Any help I could get -- that'd be great!
Add ons of praise:
My sister is getting out of the hospital! Very good.
As of today I have a brand new niece! Seth's brother and his wife had their baby, a baby girl! What a glorious gift from the Lord!
Praise
Praise
Praise
February 24, 2010
February 23, 2010
February 19, 2010
Health
You guys are just too amazing.
Thank you for all of the nice comments! I feel the love. I hope I am half as nice and gracious to people as you guys have been to me. I read the comments you left, and then when I was falling asleep at night Seth re-read them to me out loud so I could be doubly blessed. I have been so encouraged by each and every person who has taken the time to write me a little comment or note. If God can use a little, sinful, weakling like me it just shows how powerful He is.
Today has been a loooong day. A good day, I can't complain, but long. It was a clinic day. Clinic days are always long days. They consist of blood drawing, x - ray, PFTs, vitals and of course talking with the nurse and two doctors separately. Not to mention the dreaded waiting room. I think it should be more called the black hole or something. You get lost there for hours upon hours, and I feel lucky to ever emerge. I met a really nice guy named Mike today though. We had good conversation, which helped the time to fly by faster.
I have to start two new medications to help keep all my levels, well, level. The doctors and I also discussed that I have MRSA in my sinuses, but they don't feel like it needs to be treated as I am asymtomatic.
The good news is I don't have to come back to clinic for a month! *Sigh* Very nice. I was very glad to hear that. The less days spent at the hospital the better. In other good news my FEV1 rose to 83%! Up 6 percent from last time! Love. It.
On the way out I stopped to visit my sister (who also has CF) who is admitted as an inpatient right now. Please keep her in your prayers. Being in the hospital is a hard, miserable time. Even if you have been there many times before, it doesn't get much easier.
My laptop is at the shop getting healthy and fixed up again, I don't know how long it will be there. I hate to update from this ancient desktop pc, heap of plastic.... and don't want to even attempt to upload photographs from this thing. I'm trying to avoid going online as much as possible...
Until next time...
Thank you for all of the nice comments! I feel the love. I hope I am half as nice and gracious to people as you guys have been to me. I read the comments you left, and then when I was falling asleep at night Seth re-read them to me out loud so I could be doubly blessed. I have been so encouraged by each and every person who has taken the time to write me a little comment or note. If God can use a little, sinful, weakling like me it just shows how powerful He is.
Today has been a loooong day. A good day, I can't complain, but long. It was a clinic day. Clinic days are always long days. They consist of blood drawing, x - ray, PFTs, vitals and of course talking with the nurse and two doctors separately. Not to mention the dreaded waiting room. I think it should be more called the black hole or something. You get lost there for hours upon hours, and I feel lucky to ever emerge. I met a really nice guy named Mike today though. We had good conversation, which helped the time to fly by faster.
I have to start two new medications to help keep all my levels, well, level. The doctors and I also discussed that I have MRSA in my sinuses, but they don't feel like it needs to be treated as I am asymtomatic.
The good news is I don't have to come back to clinic for a month! *Sigh* Very nice. I was very glad to hear that. The less days spent at the hospital the better. In other good news my FEV1 rose to 83%! Up 6 percent from last time! Love. It.
On the way out I stopped to visit my sister (who also has CF) who is admitted as an inpatient right now. Please keep her in your prayers. Being in the hospital is a hard, miserable time. Even if you have been there many times before, it doesn't get much easier.
My laptop is at the shop getting healthy and fixed up again, I don't know how long it will be there. I hate to update from this ancient desktop pc, heap of plastic.... and don't want to even attempt to upload photographs from this thing. I'm trying to avoid going online as much as possible...
Until next time...
February 16, 2010
Spark
Here I am again. Awake.
I feel the most creative, the most artistic, in the middle of the night -- when I am too tired to do anything about it.
I'm in the mood to walk across the street to Hart's fabric, pick out some Japanese imported cloth, and sew a little bag.
I'm in the mood to do a sideways french braid in my hair.
I'm in the mood to go browse through some antique stores in Soquel in search of the perfect side-table for my living room.
I do plan on doing all of these things, I just can't do them now. Now as in three thirty in the morning.
Have you ever walked on a treadmill for a long amount of time, hopped off and walked across the room? Feeling like you are walking across space very fast? Gliding forward with ease and moving at an accelerated pace.... I love that little rush.
That is my life right now.
Although instead of just feeling like I living at an accelerated pace, I am living at an accelerated pace. In Yosemite I woke up every morning and just laid in bed waiting for the sun to rise, waiting for the day to begin. It couldn't start soon enough for me.
Now at home I am working my fingers to the bone.
Cooking gourmet dinners
Organizing every little nook and cranny, drawer and cupboard I come across
Scouring, polishing and scrubbing
Barely taking a second to sit down
And I adore it.
Making up for lost time I guess. Putting on candles and music. Being a homemaker. Our house hasn't been this nice in a long time. I am starting to wonder what I will be filling my time with after the whole house is cleaned and organized. Maybe I'll start classes - photography classes perhaps.
A dream of mine is to start my own photography venture. To be an on location, natural light photographer specializing in young children and families. What could be better than that?
But there I go again -- being overly motivated in middle of the night, when I should be sleeping. Maybe it is "safer" to dream and aspire in the wee hours of the morning. Because in those hours I can't fail. You can't fail if you don't try, ha.
I don't know how long this high will last. I hope it lasts forever. It has been two months I have felt this way. I worry that something bad has to be around the corner. I love my life a little too much. Things are going a little too well. Never has that been the case for me. Maybe a couple of summers when I was an elementary school kid. I do remember feeling pretty carefree back then. I think.
I concern myself with how best to spend my time. I have been given an extra helping of time, energy, and motivation -- what I am I gonna do with it? How can I harness it? How can I apply it? What should I do? It has to be something worthwhile, something lasting. I just don't know what yet.
Suggestions are welcome.
Speaking of suggestions, I love getting comments. It is nice to know that people read, and people care. If I was writing my thoughts just for me, it would be tucked away in a moleskine journal, hidden, never to be seen. Human interaction, it's a wonderful thing. Building each other up, encouraging one another as God intended us to do. My most private thoughts are not on this blog of course - just between me and God. The other stuff is fun to bounce off people though.
I need encouragement and support to follow through with all of these projects and ideas I brainstorm up in the night.
Especially the one about french braiding my hair. Haha- just kiddin'
I feel the most creative, the most artistic, in the middle of the night -- when I am too tired to do anything about it.
I'm in the mood to walk across the street to Hart's fabric, pick out some Japanese imported cloth, and sew a little bag.
I'm in the mood to do a sideways french braid in my hair.
I'm in the mood to go browse through some antique stores in Soquel in search of the perfect side-table for my living room.
I do plan on doing all of these things, I just can't do them now. Now as in three thirty in the morning.
...
Have you ever walked on a treadmill for a long amount of time, hopped off and walked across the room? Feeling like you are walking across space very fast? Gliding forward with ease and moving at an accelerated pace.... I love that little rush.
That is my life right now.
Although instead of just feeling like I living at an accelerated pace, I am living at an accelerated pace. In Yosemite I woke up every morning and just laid in bed waiting for the sun to rise, waiting for the day to begin. It couldn't start soon enough for me.
Now at home I am working my fingers to the bone.
Cooking gourmet dinners
Organizing every little nook and cranny, drawer and cupboard I come across
Scouring, polishing and scrubbing
Barely taking a second to sit down
And I adore it.
Making up for lost time I guess. Putting on candles and music. Being a homemaker. Our house hasn't been this nice in a long time. I am starting to wonder what I will be filling my time with after the whole house is cleaned and organized. Maybe I'll start classes - photography classes perhaps.
A dream of mine is to start my own photography venture. To be an on location, natural light photographer specializing in young children and families. What could be better than that?
But there I go again -- being overly motivated in middle of the night, when I should be sleeping. Maybe it is "safer" to dream and aspire in the wee hours of the morning. Because in those hours I can't fail. You can't fail if you don't try, ha.
I don't know how long this high will last. I hope it lasts forever. It has been two months I have felt this way. I worry that something bad has to be around the corner. I love my life a little too much. Things are going a little too well. Never has that been the case for me. Maybe a couple of summers when I was an elementary school kid. I do remember feeling pretty carefree back then. I think.
I concern myself with how best to spend my time. I have been given an extra helping of time, energy, and motivation -- what I am I gonna do with it? How can I harness it? How can I apply it? What should I do? It has to be something worthwhile, something lasting. I just don't know what yet.
Suggestions are welcome.
Speaking of suggestions, I love getting comments. It is nice to know that people read, and people care. If I was writing my thoughts just for me, it would be tucked away in a moleskine journal, hidden, never to be seen. Human interaction, it's a wonderful thing. Building each other up, encouraging one another as God intended us to do. My most private thoughts are not on this blog of course - just between me and God. The other stuff is fun to bounce off people though.
I need encouragement and support to follow through with all of these projects and ideas I brainstorm up in the night.
Especially the one about french braiding my hair. Haha- just kiddin'
February 13, 2010
65 Red Roses
Please keep this girl Eva and her family and friends in your prayers.
Kindly and thank you.
Kindly and thank you.
Our Trip - Day Three
Day 3
Our third and last day in Yosemite it was snowing the hardest. It was just dumping. We had another day of playing hard. It was cold and wet, but all of the fresh snow was nice and powdery for great snowball fights.
Crane Flats is where we spent the day. We, like all of the other days, had the whole place to ourselves.
We made our own sled run, and went down in saucers.
We dug a tunnel and we all three crawled through it, (but not at the same time)
Gas station.
Our third and last day in Yosemite it was snowing the hardest. It was just dumping. We had another day of playing hard. It was cold and wet, but all of the fresh snow was nice and powdery for great snowball fights.
Crane Flats is where we spent the day. We, like all of the other days, had the whole place to ourselves.
We made our own sled run, and went down in saucers.
We dug a tunnel and we all three crawled through it, (but not at the same time)
Levi built a hideout fort...
Gas station.
February 11, 2010
Our Trip - Day Two
Day 2
On the second day of our trip to Yosemite we were looking for something a little bit more structured to do. We chose to check out Badger Pass Ski Area in hopes to go inner tubing. By this time a storm had rolled in. It was raining down below in the valley and snowing up on the tops of the mountains.
Seth had to put on chains so we could make it up there. When we got to Badger Pass, the inner tubing didn't look that interesting, and the lady who worked there didn't really recommend it for that day. So we ended up deciding to go cross country skiing!
On the second day of our trip to Yosemite we were looking for something a little bit more structured to do. We chose to check out Badger Pass Ski Area in hopes to go inner tubing. By this time a storm had rolled in. It was raining down below in the valley and snowing up on the tops of the mountains.
Seth had to put on chains so we could make it up there. When we got to Badger Pass, the inner tubing didn't look that interesting, and the lady who worked there didn't really recommend it for that day. So we ended up deciding to go cross country skiing!
It was so fun! Seth, Levi and I had never done it before. It was pretty easy (with my new lungs)
Only a few months ago I was having trouble walking, let alone being able to ski.
It was so refreshing.
To breathe in the mountain air
To climb the hills briskly
To coast down and enjoy the freedom
Lovely.
Levi did great -- he was a natural. He fell a ton of times, but he was also able to stay up for some pretty long stretches. He had a good time, and asked if we could come back to do it again the next day.
(He said that everyday about everything we did. Ha.)
An extraordinary way to explore gorgeous mountains.
February 10, 2010
Our Trip - Day One
Day 1
Our first full day in Yosemite we only had one goal in mind: to play in the snow! And that's exactly what we did! We were nervous at first that we wouldn't be able to find any, because the weather was so clear, and we weren't positive there was any left over from the last storm. There is nothing worse than telling a five year old that you are going to play in the snow, only to not be able to.
The mountains were covered in snow! As we climbed the mountain and saw the first couple patches of snow were so thrilled. We drove up to Merced Grove and played there for the first half of the day.
Snowball fight!
We made a snowman.
Levi was slightly sad to leave the snowman behind when we had to go.
Snowman tragedy.
The second part of the day we hiked to see the lower Yosemite falls.
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