October 14, 2009

LISTED

I am now actively listed on the transplant list. My lung score is pretty high, which places me at the top of the list. Also my blood type is a common one that actually gets the most donors. The nurse at Stanford told me today that her gut feeling is that I will get lungs very fast.

So as of this morning we just wait to get "the call." I could be called any moment of the day or night to come down and get prepped for surgery. We have to be able to drop everything at a moments notice and always be reachable by phone.

Waiting for the call means waiting for someone to die. Please keep the donor's salvation in your prayers along with their family and friends. Please start praying ahead of time for peace for the people who lost a loved one.

Please keep us in your prayers too. It is a crazy roller coaster ride of emotions right now.

October 08, 2009

Amazing Summer

I haven't been very good about keeping my blog updated. The beginning of this past summer was amazing and fun. Here are a few photos of this summer's activities I didn't write about.....




















October 07, 2009

New Adventure...

Transplant.

This morning I awoke to a phone call from the transplant nurse coordinator up at Stanford. She told me that they had reviewed my evaluation case and that they have accepted me as a good candidate for a double lung transplant. That is good news! So I am not officially listed yet.... I still have a few loose ends to tie up on my end. Once everything is in I could be listed as early as next week. Once I am listed we just wait for "the call."

These past two months of my life have been the hardest I have known. Looking ahead it doesn't look to be any easier. I think things will get worse before they get better. In the meantime all of the transplant evaluation has been a lot. It's been a lot of work, a lot of stress, a lot of pain, and a lot to wrap my mind around. It has gone pretty fast and smooth for the most part.... but I have a new understanding and respect for people who have been through a double lung transplant. It is not a walk in the park.

My head has been swimming lately with so many thoughts, the risks and details surrounding transplant. It can be very overwhelming at times. There is a lot of "unknown" involved with lung transplants. Nothing is guaranteed. I just pray that God guides and directs us to stay in His will. I cling to His word, to the promise of everlasting life... to being alive with Him for eternity. God does not promise to make my life here on earth easy, but all I can do is trust what the Bible says to be truth.

I pray for my family. This is not just a hard time for me, but the people I am close to. I see the stress in my families faces. Levi is concerned too and keeps asking about when they "cut me." Please pray for us. Please pray that the Lord gives us peace that passes understanding.
I know God may choose to use this upcoming surgery to bring amazing changes to our lives. It is exciting and yet still incredibly scary. There are moments when I can't wait to be able to run up a flight of stairs! There are moments I dread waking up on a vent in ICU ....

I am hoping to have Seth or my Dad update this blog when I am not able to. So stay tuned as we embark on this new adventure.