Today was a day I wouldn't want to repeat anytime soon. I squeezed in three separate appointments up at Stanford. Things often don't run very smoothly at that hospital, and I was running from appointment to appointment with no time to spare.
My day started at 9:30. I did my treatments until 10:45, showered, got dressed, got Levi ready, and sadly did not get a chance to eat breakfast. I got out of the house by noon, to arrive up there by 1:00. I parked at Lucile Packard at about 1:00 and then took the long walk to the main Stanford hospital. It took about a half an hour to register, then the guy at registration directed me back to Lucile Packard for my appointment. So Levi and I made the trek back over there, and ran into my mom who had been looking for me.
Once at Packard they couldn't find record of any appointment, so a nice man tracked it all down for me and I had been directed to the wrong place. So, back off to a main Stanford clinic again which was quite a long walk, in which I got lost. Finally I arrived at my audiology appointment, very late, but they still saw me.
By the time I got out of that appointment and met up with my parents back at Packard it was 2:30, which was the time I was supposed to be at my next appointment. So I hauled over to nuclear medicine at main Stanford as fast as my short legs and my congested lungs could carry me. When I arrived I was surprisingly only five minutes late. By the time they got me in there, scanned my bones, and let me go it was now 3:30. Which, you guessed it, was the time I was supposed to be at my next appointment. Again, when I asked a lady in registration to point me towards the right place, they found no record of me having an appointment scheduled. Like the first time, I knew that wasn't true.
Okay, let me just tell you, even though Seth had packed a nice lunch for me the night before I had not even had a second to even sit and rest let alone eat one, single, solitary bite all day. So even though it was about 3:30 and I was due for my next appointment I was at this point thinking "screw this - I have to eat!!!" So I swung by Rebecca's hospital room, shed a few tears out of pure exhaustion, and stuffed my face as much as I could for ten minutes before we headed back over to Packard for my hour-and-a-half pulmonary function tests.
After that long, involved, fatiguing appointment, I left the grounds of Stanford, around 5:00, waited in some traffic, and arrived through the glorious and inviting backdoor of my house finally around 6:15. Yes, my day could have been much worse, but yes my day could have been a lot easier too!
On the positive side of things, all the procedures themselves went well. The hearing test I had to have because many CF patients lose their hearing due to the harsh antibiotics. I am happy to report that my hearing is still within normal range.... so yay for that!
The bone scan I had to have because my poor little bones have been diagnosed with osteopenia. Again, caused by side effects from medications I am on, such as heparin. I have to get my bones scanned every year.
Lastly, was my annual PFTs which are a lot of work and like I said before, are pretty wearing. More good news though because my FEV 1 was at baseline at 41% lung capacity. (Which had risen 4% from my last clinic visit.)
I am thankful that God got me through this crazy day. There are some other details I left out of this post that added to this difficult day also. I am just glad it is over! All I have left now is my diabetes test, but I don't want to think about that right now..............